Wednesday, October 2, 2013

New Ears, New Tears

As you may have read in previous posts, Sadie's hearing has progressively gotten worse over the past 2 years.  It has decreased by about 10 db in various frequencies.  As must as I didn't want to admit it, I knew it was probably time to get new hearing aids.  I love, love, love (did I mention that I love) her current hearing aids (Widex Baby 440).  However, they just don't have enough power to support Sadie's current hearing thresholds. 

So, off to the Audiologist we went.  We spoke a lot about the various options that we had, however, I knew that I wanted to stay with the Widex brand if at all possible.  They are the Cadillac of hearing aids, and they are worth every penny.  After previous experiences with different brands, there was no way I could go backwards.  Our audiologist called up the pediatric rep for Widex and said "Do you remember Sadie Lovins?" and her response was "Do I remember her? I have her all over my marketing collateral." Sadie was the first child at MEI fit with the Widex Baby hearing aids, so the sales reps used her as a case study for a conference.  Anyways, after discussing the various options for Sadie, the rep decided to let us borrow her loaner aids.  She said that she thought Widex might be coming out with something new, but she didn't know what it was or when.  So instead of us buying something now (and potentially outdated soon), she was gracious enough to let us borrow this set of aids until we find out what is in store for the future. Thank you Widex!!!  Her new aids are the Clear Fusion 440.

The hard part with these new aids, however, was that Sadie would have to transition to a more typical ear mold.  The Widex Baby's have been great because they have the receive in the canal.  They are super easy to put in and they hardly show!  But with that type of receiver comes less power. So we had an ear mold created while we were visiting the audiologist.  We hadn't had one created in over 2 years!

A couple of weeks later when we were at MEI for speech therapy, her audiologist let us know that her aids came in. She had a few minutes to spare, so she was able to fit Sadie in to her schedule (nice not to have to make another trip down to MEI!)  I had been talking to Sadie about how she was going to get "big girl hearing aids" and she had been excited, so I figured this transition would be a piece of cake.  Oh how I was wrong.

The first thing Sadie said was "They aren't pink."  Uh oh, here we go.  Next when I tried to put them in her ears she FREAKED out. She started sobbing and asking for her old hearing aids back.  The audiologist immediately turned the aids down, thinking that maybe they were too loud. I knew, however, that it was just Sadie not liking the new ear molds.  Talk about breaking my heart. She cried and cried for about 20 minutes.  The whole time I am trying to calm her down without breaking down myself. I just kept thinking, this is SO not fair that she has to go through this.  But, I finally got my head straighted out and realized that it could be so much worse.  So, after lots of hugs (and a bribe of a new toy), I was able to get the new aids in her ears.  She still did not like them, but she kept them in. I didn't feel comfortable leaving her all day with these new aids for fear of another melt down, so I ended up taking the day off work.  And off to the toy store we went.

All day I asked Sadie if I could put jewels or glitter on her new aids, but she would not let me (odd for her).  At nap time she asked to keep them in.  I was in no mood for an argument, so I let her.  That night she asked to keep them in all night (odd again), so I told her that we had to let her ears breathe.  I tried AGAIN to let her allow me to jazz up her aids, and she finally let me! So we blinged out her aids, and now she LOVES them.  She went to school the next day and was showing off her aids to all the teachers and her friends. At nap time she said to her teacher "you can take my aids out, but try not to break them, they are new."  Man I love that kid! 


  Her old aids and new aids side by side (check out that bling).
How her old aids used to look in her ear
 How her new aids look in her ear.  You can see the mold is very different and how it could feel funny to her.
 
 

8 comments:

  1. Hi, I found your blog while searching for reviews on Baby 440 because my 5mo son just got them. I LOVE your blog, thank you for sharing! I have two questions: 1) our audiologist said it's ok to let baby nap with aids on, but I'm not sure about it. Did you let Sadie nap with them on? 2) my husband and I experienced the same about finding out the hearing loss because of newborn screening and are now considering genetic testing. We've asked insurance and it's not covered, and we're wondering the price range of the test?

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    1. Hi! I am glad you found my blog. As for your questions:
      1.) I would not recommend a 5 month old sleeping in the aids. They are very prone to putting things in their mouth and would hate for them to swallow the aid or ruin it. I think as the child gets older and knows to keep them out of their mouth it is fine. Our audiologist, though, did recommend not sleeping in them all night as our ears need to "breathe."

      2.) I honestly don't remember, but I think it was around $300. Our audiologist gave us the information for a company called soundgene and that is who we used. We had to have a small sample of Sadie's blood sent off to a lab and then they provided the results back to our pediatrician. Hope that helps. If you have any other questions, feel free to email me at sarabessinger@gmail.com.
      Thanks!
      Sara

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  2. I must say, Sadie is adorable, how old is she now? I stumbled across your blog when I was searching up for newer molds, I'm 19 years old and I was born with Moderate hearing lot, which in my case is Genetics, but I didn't get my first set of aids until I was 5 years old. I look forward to reading more posts :)

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    1. Hi Summer! I am glad you found my blog. Sadie is 3 years old now, and was aided at 6 weeks. Sadie's hearing loss is also genetic (connexin 26). What kind of hearing aids do you wear? What kind of molds are you looking for now?

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  4. I'm so glad that Widex hearing aids have helped Sadie - she is such a cutie! I work as Widex' social media manager and would love to share Sadie's inspirational story on our blog. E-mail us at contactus@widex.com if you are interested in sharing your story with our community of people with hearing loss. Thanks! -Stephanie at Widex-

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  5. Hi Sarah, I found this blog while triyng to get more information about
    the widex baby super 440. My dad and I are triying to help a family in Colombia
    with a 7 months baby with hearing loss. The doctor told them they have to buy the
    Widex 440 for the baby and the price in Colombia is $5,000.00. They cannot afford it and the insurance does not cover it. I live here in United States, and I have been trying to
    find a place to buy them. We prefer used ones for costs. My dad and I are going to pay for them.
    My question is if maybe you are interested in selling the old ones from Sadie, or maybe you know where we can buy used ones.
    I really apreciate your help and knowledge.
    Adriana C.

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    1. Hi Adriana,
      Feel free to email me at sarabessinger@gmail.com and we can chat about it!
      Sara

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